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My youngest daughter was diagnosed with an Intellectual Disability in 1998. At the time I was not aware of how much hatred existed towards children and adults based solely on IQ score. A quick Internet search of the words retard and retarded turned me into a hate speech advocate overnight.In 2010, I created Family Member Inc., a 501c3 advocacy organization that works to ensure that all people living with special needs and disabilities are represented fairly and accurately in news, entertainment and social media.Our mission is to erase the negative stereotypes about disability that exist today, starting with language. We work to educate people that it is not acceptable to use slurs like the r-word as they only marginalize and make a mockery of the disability community.At Family Member we believe that words have power and can hurt others. Words matter. We teach others how to stand up and speak out when they hear negative language about disability. When you talk about someone with Down Syndrome, or Cerebral Palsy or Autism, don’t say that they suffer from these disorders. It’s important to remember that people live with their disability as productive members of society and need to be portrayed as such.We have had great success, but still have much work to do. When we started out Facebook didn’t even list disability as an option for reporting offensive pages and groups. Now, thanks to Family Member they do. Facebook used to have groups with these hateful names; Kill All Retards, I Like Stealing from Blind People, Eating Tards, and comments on these pages such as “I like hitting retards with brooms.” While these groups have been removed thanks to reporting by the Family Member community, we must be vigilant in our efforts to remove the new hate filled pages that continue to pop up. It’s a bit like playing whack-a-mole. One hateful group gets removed and two pop up in their place.
In 2010, disability was not on the ADL’s radar. The groups they listed as targets for cyberbullying did not include disability. After meeting with representatives from the ADL, disability is not only included but I sit on the ADL’s Education Committee, helping to eliminate bullying and hate in our schools.
Family Member has also been successful in getting hateful websites targeting children with Down Syndrome removed from the web. Videos on YouTube depicting a man with an Intellectual Disability being abused at his place of work at a car dealership in California have also been removed and the employer notified. Questions on Yahoo Answers like “Is An Abortion Cheaper if the Baby is Retarded?” have been taken down. A lot of time is spent seeking out the hate and getting it removed. At Family Member we put out a lot of fires.
In October of 2014, I traveled to Cincinnati to address the executives at P&G at their annual shareholder meeting. P&G employs Larry the Cable Guy as their Prilosec spokesperson. A search of Larry’s videos on YouTube show the comedian mocking kids with special needs and even imitating how people with Cerebral Palsy walk. In Larry’s book Git-R-Done, he thinks radio executives have forgotten where they come from and if it wasn’t for the radio personalities they would “be on the same level as the retard working the fry machine at Wendy’s.” His Christmas album includes a song called Donny the Retard. Although P&G have decided to keep Larry as their spokesperson, we are still waiting to see if he will apologize to the disability community.
All of the hate targeting children and adults with disabilities taking place online and in comedy clubs, shouldn’t just bother the disability community. It actually hurts all of us, and that’s why we have created a movement to teach people why it’s so important to speak up and stand up to hate. It’s never easy at first, but words matter. What we call people is how you treat them. I’d like to think that having a child with a disability has offered me a front row seat into a world of being an “other.” I am who I am today because of my child, and hope you can learn from her also. At Family Member we’re fighting hate and protecting the most vulnerable among us, and it feels right. Hope you’ll speak up with me.
We are asking for you to speak up when they see a person with a disability being bullied. We ask that you speak up when you hear slurs like retard and retarded. We want to engage the world to not hate and to stop disability hate speech. Words Matter, just ask someone with an Intellectual Disability.
Family Member Mission
Family
Member will work to ensure that all people living with special needs and
disabilities are represented fairly and accurately in news, entertainment and
social media. We believe in equality and will work hard to erase the negative
stereotypes that exist today. We work to ensure that each and every person
living with a disability is portrayed honestly and will teach that it is not
acceptable to use slurs that marginalize and make a joke out of another
person's very existence.
Words
have power and can hurt others. We will make it our mission that your family
member will not be denigrated based on their disability.
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Saturday, January 23, 2016
JOURNAL XXI
JOURNAL XXI
I went to the Rite-Aid and I had to sit in the waiting area of the
pharmacy and wait for the pharmacist. I was listening to the song
on the store Muzak because I liked it...maybe I'll remember which
song it was later, an old song from 10 or 20 years ago. Anyway,
for some reason it sounded like it said “heroin addict”. That
phrase wasn't in the actual song lyrics, but it might have been
remotely obliquely connected to the idea of it—I'm not exactly sure
why I would hear such a thing.
I should just ignore it, but it made me start to think about it.
The first thought was, “I am not a heroin addict, nor have I ever
been one.” Then I thought I haven't even seen heroin for at
least 25 years.
Then I thought it's possible that somebody “lied on me” and
called me a heroin addict, even on paper somewhere. So what got
erased is I wrote a true confession of every single experience with
heroin, which wasn't finished. I was going to publish it on my
blog. There were only 5, not counting Dr. Grossman and Dr.
Schechter giving it to me in an IV drip for diverticulitis pain in
the hospital. I said I'd tell the whole truth, and I'd swear on a
stack of Bibles in a meeting, and they'd know if I was lying.
The first time I ever experienced heroin it was not an injection; it
was by snorting. After Yale I lived in Manhattan awhile, went up to
the Woodstock Festival, and one of the Hog Farm Security invited me
to their commune in New Mexico. I lived there a year and a
quarter, and one day someone came up and passed around heroin for us
to snort.
The second time I injected; it was the first time I injected. I was
living with Michael Blanc, my old friend from Lowell High School in
1971 in San Francisco. I don't feel like I'm snitching on him
because I don't think I can hurt him because I assume he's doing well
as he was last time I saw him. Afterwards he went back to UCSB, got a
degree in math, and worked 15 years as a computer programmer in
Fremont.
My mother gave me $15, and he was into it, we went down and bought a
balloon of heroin, took it home, and he knew all about how to cook it
up and shoot it up. I wasn't very impressed and didn't want to try
it again. At the end of it he went down to the corner, got on his
knees by the sewer cover, and vomited into the sewer for 5 or 10
minutes. I was thinking, “What do these guys see in this?”
They not only ran the risk of addiction, which they claimed they
weren't, people were dying all over from overdoses—famous rock
stars like Janis Joplin, Jimi Hendrix, and Jim Morrison.
It made me sick too, but I didn't vomit. I remember saying to him,
“Everything looks like a TV with the horizontal control off,” and
it did, it just kept blinking by, too fast. I just lay down, went
to sleep, and waited for it to be over.
I never went looking for it again, and that time I wasn't really
looking for it. The next time, the 3rd time, I wasn't
looking for it either. The 2nd was the last time I ever
injected heroin. In the early '80's I was just walking around
downtown for some reason and this girl invited me up to her
apartment. When I got there there were a bunch of people and they
talked me into letting them shoot me up with some heroin. They even
had some bunk hash they wanted to sell me. That was pre-AIDS days
because afterwards I would never have taken a risk like that.
That's why she invited me and they were high-pressuring me for the
$20, so it was just easier to go along than try to fight with all of
them to leave. That was the last time I ever injected.
The 4th time was the one time I smoked it. Some guy just
gave me some to smoke, around 1989. I never got addicted to it.
I'm not necessarily going to count the stay in the hospital as the
5th time, but I'm noting it. In 2001 I got stomach
pains, Laurie took me to the UCLA emergency room which was too full
on the weekend, so we went to UCLA-Santa Monica, where I knew Dr.
Grossman. Dr. Schechter said I had diverticulitis and he wanted to
do an emergency colon resection (with my Anthem Blue Cross PPO) right
away, or they could admit me to the hospital and do the surgery in a
few weeks.
I chose to be admitted to the hospital, which I was for 5 days.
They had an intravenous drip of Dilaudid, which I think is morphine,
for the stomach pain. Dr. Grossman or Dr. Schechter wrote the
prescription. It worked great, and at the end of the 5 days the
pain was gone. The nurses show you these faces from 1-10, pain
levels, smiling-frowning, and ask you what number is your pain.
Mine was 0, until the surgery about 3 weeks later, which was
successful. The nurse said that's not enough morphine to get
addicted, when I asked her.
Now, for the 5th and last time, or the 6th, if
I count the hospital; I'll say 5th. Around 2003 my
license was suspended, which is a long story, I was living in
Laurie's apartment, and she asked me to take her car for repairs at
the 76 Union station with a mechanic by the Santa Monica Airport,
wait for it, and bring it back. The guy said wait an hour, and I
was wandering around the 76 station. Then I wandered on down the
sidewalk, it was early in the spring, and all these bright, orange
poppies were growing in the cracks in the sidewalk and by the side of
it, thousands of them.
Back in the day I went with this hippie girl from the Hog Farm, a lot
older than me, who told me she ran away to the Haight-Ashbury during
the Summer of Love in 1967. When we lived in San Francisco, she
showed me a lot of things the old hippies used to do with wild plants
they could find just growing wild, in back alleys, by the sidewalks,
in vacant lots, etc. She showed me you could pick wild licorice,
eat it, and it would taste like the candy they made from it. It
grows wild everywhere.
When we were in New Mexico, she used to go out in the woods, pick
greens, and make a salad. She showed me dandelion greens, you can
eat those. She had all these books about edible wild plants. Rose
hips was another one; they used to make tea from them. There were
all kinds of berries, blackberries. So anyway, one of them was
these wild poppies. She told me that the poppies were the same
thing they made the medicines heroin and morphine from, but in the
flowers it was in a much weaker form. She told me the hippies used
to pick so many poppies that the Governor made them the State flower
so they wouldn't pick them all. I honestly don't know if it's
still illegal to pick wild poppies, weeds growing up in the sidewalk.
On the Grapevine between Bakersfield and Los Angeles every year they
have photos in the Bakersfield paper of the beautiful fields of
poppies on the hill just before you descend towards Bakersfield.
And there are fields near Lancaster where tourists go to photograph
the poppies. I don't know if they're forbidden to pick them,
though. Still don't know, I just figured, who would know? I had
nothing to do, so I thought, I wonder what would happen if I eat one
of these flowers? I picked one, swallowed it, got really sick,
picked up the car, drove home and went to sleep.
But for some reason the experiment had intrigued me. These poppies
had come up all over, and there were lots of them in the alley to the
garages behind our apartment building. I experimented with them 5
or 10 times, until I found out that if I took just a little piece of
a petal, about 3/8” across, I felt great for about an hour or two.
Since I didn't have a car, when I went by them, I'd take a little
piece, how could it hurt? A little piece of a wild flower growing
in the alley? And it probably wouldn't have.
But, I had a surgery before the colon resection, an angioplasty and
angiogram, heart surgery, also at UCLA-Santa Monica, and also from
Dr. Grossman. Afterwards he gave me a little bottle of
Nitroglycerin, told me, “If you get chest pains take one, hold it
under your tongue for 5 minutes, if you still have chest pains take a
2nd one, hold it under your tongue for 5 minutes, if you
still have chest pains take a 3rd one, hold it under your
tongue for 5 minutes, if you still have chest pains, go to the
nearest emergency room.”
I did this a few times, but it was never a heart attack. The chest
pains went away, they said I was OK and sent me home, but the nurse
would say, “It's good that you took the Nitroglycerin and came in.
Better to be safe than sorry.” Maybe it's standard procedure for
coronary artery disease or something.
Anyway, one time I got chest pains after eating a little piece of
poppy petal. I took the Nitroglycerin all the 3 times, still had
the chest pains, and decided I'd better call the ambulance. I
informed the paramedics in the ambulance and the emergency room
personnel, probably at Daniel Freeman Hospital in Marina del Rey,
that I had eaten a little piece of poppy petal before I got the
chest pains, just in case that was the cause, just in case I had
poisoned myself somehow.
They all just noted it down on my records, and didn't say anything.
As most times the chest pains went away, the EKG and monitors said I
was OK, they sent me home, the poppy petal probably hadn't affected
me at all. I just told them just in case there was something
seriously wrong. I guess the chest pains were pretty bad if they
didn't stop with 3 Nitroglycerins but only by themselves hours later.
I never touched any of those poppies ever again.
In addition to that, around that time there was another event when I
had chest pains, took Nitroglycerin, and called an ambulance, and
this time I told the paramedics and the emergency room personnel that
I had smoked some pot, for the same reason. They did the same
thing, just wrote it down in my record and said nothing. I was OK,
and they sent me home.
I think these reports from the emergency rooms were sent to my
primary care physician at that time, Dr. Edward Riceberg. I think
he said something about receiving reports that I went to the
emergency room, but he didn't say anything about poppies or pot.
In addition, at one point I called his office and asked his nurse if
he would recommend medical marijuana and charge it to my Anthem Blue
Cross PPO, since I didn't want to ask my brother-in-law Jonathan for
$150, the price of cards in L.A. at that time, because I thought that
he was against it and would refuse. She said Dr. Riceberg wouldn't
either, if he did he would lose his license. I don't know, maybe
she told him.
At any rate, in the end my sister had me seeing the Life Adjustment
Team, whose CEO's brother is a Clinical Alcohol and Drug Counselor.
I didn't know that for a long time. They call it “psychiatric
rehab”, but maybe it's a drug rehab. Mikey was put in one for a
year, and he said it's for hard drugs, cocaine and heroin. That's
why I'm writing the exact literal truth of my heroin history: I am
not now, nor have I ever been, a heroin addict. Also, more than a
year ago, my primary care doctor now, Dr. Jonathan Noble, said,
referring to medical marijuana, “I don't think you should,” and
I've been completely clean and sober since. I went to the Narcotics
Anonymous meeting regularly and they gave me an award.
Eric Abrahamson
January 23, 2016